Yes We are All Still Alive
Glad to hear it! Welcome 'home'!
Honestly, I thought you would have all forgotten about us by now.
Not likely.
I didn’t realize that there were people who were really invested in our story which makes me feel both all warm and fuzzy instead and completely terrible at the same time.
Toss the terrible part and keep the warm and fuzzy, okay?
That's terrible! I mean that shirt
totally clashes with the shorts.
During that time this also happened:
<gasp> People lost their faces!!! The horror!
Yep. We made another trip to Disney.
Oh! Well, that's okay. You can lose your face in Disney.
This time with my cousin and her family. It was an… interesting trip. Very different when you are travelling with another family.
Uh, oh...
BGirl dropped a huge bomb on us: she was cut from her basketball team on Thursday
Oh, no! Sorry to hear that.
That has been a tough road for her. She has been “BGirl the basketball player” since she was 12. It was a part of her identity. Now that she isn’t playing, she doesn’t know who she is.
Totally understand that. Elle (DD19) was on a dance team since she was 3. Now... zip. Done. Been a bit of an adjustment.
For now, she’s working full time at Tim Hortons (how very Canadian eh?)
ALL RIGHT!!!!!
Whoops! Sorry.
the following week when we got the call that PrincessK had cultured pseudomonas
In case you don’t know what pseudomonas is (and really why would you?) it is a bacteria that is found “everywhere”. It is typically not an issue for the general population but for people with CF their mucus provides the perfect breading ground. It is the most common form of bacterial infection in CF patients that leads to chronic infection and lung deterioration… so not good.
It is also very difficult to eradicate.
Oh, man. So very sorry to hear this.
Poor PrincessK is losing about 1.5 hours of sleep every day over what she was getting before.
That's rough. Kids need their sleep.
This breaks my heart. Awww.... crap. Poor little thing.
So now we are on a 1 year treatment plan
One. Year.......
Praying for you if you wish, thinking of you if you'd prefer.
I’d like to say that through all this PrincessK has been her same bubbly and happy self, but unfortunately that just isn’t the case.
The reduced sleep has been really hard on her and she is often grumpy and whiny. She regularly breaks down and cries.
It’s heartbreaking because I know this is not who she is and I want to stomp my feet right along with her and curse at the world.
It’s been a hard few months.
I have no words. But you are in my thoughts, okay?
I can’t promise that updates will be coming out quickly, but I will jump back in and give it a go.
I never say this. I always say, "Update when you can!" or something like that.
Don't worry about the updates. Take care or your little girl, your family and yourself. That's way more important.
If at some point, you feel like doing this again.... just pick it up right here. We'll be here.